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KCNK9 imprinting syndrome is a rare condition characterized by weak muscle tone hypotonia from birth. As a result, Weak Suck Syndrome infants have a lack of energy lethargya weak cry, and they move less than normal. Facial weakness and a poor ability to suck cause feeding difficulties, which can lead to an inability to grow and gain weight failure to thrive. Difficulty swallowing dysphagia often lasts into adolescence. While muscle tone may improve over time, affected individuals usually have some weakness into adulthood. The weakness can lead to permanently bent joints contractures and abnormal curvature of the spine scoliosis. KCNK9 imprinting syndrome is also characterized by intellectual disability and delayed development of speech and motor skills, such as sitting and walking. Many affected individuals have limited speech throughout life. This condition is associated with unusual facial features, including an elongated face that narrows at the temples; an upper lip that points outward called a tented lip ; a short, broad Weak Suck Syndrome between the lip and the nose philtrum Weak Suck Syndrome a small lower jaw micrognathia ; and abnormally shaped eyebrows. Some affected individuals have an opening in the roof of the mouth cleft palate. In addition to unusual facial features, some people with KCNK9 imprinting syndrome have Weak Suck Syndrome long neck, a narrow chest, and tapered fingers. KCNK9 imprinting syndrome is a rare condition.

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Hypotonia or 'floppy infant syndrome', which may occur with or without muscle weakness and cause abnormal control of the oropharyngeal structures, resulting in. ing to an uncoordinated and/or weak suck. BACKGROUND. One of the more common causes of hypoto- nia, which we shall use as an example, is Down syndrome. If your baby has a weak suck, it means that they are not creating enough intra-oral pressure or maintaining suction to effectively remove as. If your infant has a weak suck, he or she may not pull strongly or have a good latch while breastfeeding. What's more, you may not hear your baby swallowing. In the early months, you will see the loss of head support, reaching or kicking. A weak cry or suck also may be seen. Causes of New Onset Muscle Weakness. Most. My baby has a weak suck or only makes tiny sucking movements. Your baby may not have a deep enough latch. Gently unlatch your baby and try again. infant's growth is often poor, adding to the family's suction. The presence of a cleft impairs the baby's Arch Disease Child. ;–

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RB: Can you share with us the journey that led you to becoming a gay rights activist? I grew up in the port city of Chittagong, Bangladesh but since my graduation I have lived in Dhaka. I came to know about Boys of Bangladesh BoB , a queer collective in the country, during my university days but at that time I was not confident enough to come out. Later in I realised that being gay, I am more comfortable with like-minded people, so I became a member of Boys of Bangladesh and started meeting more people and attending a few events. The people there seemed decent and it inspired me to work voluntarily for the group where I have been a moderator since Boys of Bangladesh, popularly abbreviated as BoB, started out as a gay-only network. Today the network consists of the wider LGBTQ community although it remains a constant challenge working in the present political climate. BoB envisages a society where every individual regardless of sexual orientation and gender identity can enjoy life to its full potential with dignity and rights. Boys of Bangladesh is the oldest running and largest network of self-identified LGBTQ people living in the country and abroad. Based in Dhaka, this non-registered, non-funded and non-formal group is run by a pool of volunteers.

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